The second annual Aidan's Ride Sturgis, a charity motorcycle ride organized to fight ALD, will take place August 8, 2016, during the 76th anniversary of the iconic Sturgis Motorcycle Rally. Last year, 75 riders participated, raising over $13,500 for the Aidan Jack Seeger Foundation, and organizers expect an even bigger turnout this time around.
"We were so happy with the response and support we received," said Elisa Seeger, Aidan's mother and founder of the foundation. "This is another great step in our journey and mission to educate people about ALD and hopefully save families from enduring what ours did."
Adrenoleukodystrophy (ALD) is an inherited x-linked genetic disease that affects all neurological functions and reduces those afflicted with it to a vegetative state that persists until death. Aidan Jack Seeger was just six years old when he was diagnosed with ALD in 2011. He succumbed to the disease in April of 2012. Had he been diagnosed at birth, he could have undergone treatment that would have arrested the disease and allowed him to live a full life.
Held to benefit the Aidan Jack Seeger Foundation, which was established in Aidan's honor, Aidan's Ride Sturgis seeks to raise funds for the purpose of helping families with children diagnosed with Adrenoleukodystrophy, heightening awareness about ALD and pushing for legislation in every state that mandates screening of newborns for the disease.
Currently, New York is the only one of the United States to screen for ALD, thanks to Aidan's Law, passed by the state legislature in the wake of Aidan's tragic and untimely death. As of June 15, 2016, 560,000 newborns have been screened in New York and 46 babies have tested positive for the disease. Thanks to early detection, these children are undergoing treatment that will allow them to live full lives.
Register for the second annual Aidan's Ride Sturgis that will be an early morning 90-miles long ride that will start at Sturgis Guns (2324 Junction Ave.), then wind through the Black Hills, stop in Hill City, SD, and end at Woolly's Grill and Cellar in Hot Springs, SD, where participants will enjoyed a full catered brunch and receive a limited-edition pin and patch.
The ride is made possible by generous support from Metzeler Tires, Hot Leathers and Indian Larry Motorcycles. Here's the link to registration.
About Aidan's Ride Sturgis
Held to benefit the Aidan Jack Seeger Foundation, which was established in Aidan Seeger's honor, Aidan's Ride Sturgis seeks to raise funds for the purpose of heightening awareness about Adrenoleukodystrophy (ALD), help families with children diagnosed with ALD, and push for legislation in all 50 of the United States that mandates screening of newborns for the disease. The second annual Aidan's Ride Sturgis is set for August 8, 2016, during the 76th Anniversary Sturgis Motorcycle Rally. The Aidan Jack Seeger Foundation is a nonprofit 501(C) charity run completely by volunteers with every donation directly benefiting their mission.